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Europe February 23, 2026

HIV HERO FALLEN: Legacy Shattered!

HIV HERO FALLEN: Legacy Shattered!

A profound silence has fallen over the community with the sudden passing of Martyn Butler, the visionary founder of a vital organization born from personal tragedy and unwavering dedication.

Butler’s journey began in Newport, Wales, before he embraced the vibrant energy of 1970s London, finding his footing in the worlds of advertising, cinema, and entertainment. It was during this time he forged a deep friendship with Terrence Higgins, a bond that would irrevocably shape his life’s work.

The early 1980s brought a terrifying new threat – a mysterious illness rapidly claiming lives. When Higgins succumbed to Aids, Butler channeled his grief into action, recognizing an urgent need for information and support.

Martyn Butler, (David Hewett) after being made a Officer of the Order of the British Empire by the Princess Royal in an investiture ceremony at Windsor Castle. Picture date: Tuesday February 28, 2023. PA Photo. See PA story ROYAL Investiture. Photo credit should read: Andrew Matthews/PA Wire

Driven by a sense of duty, Butler established a trust in his friend’s name, a beacon of hope in a time of fear and misinformation. He understood the critical importance of reaching the gay community, providing vital education about HIV and Aids when little was known.

His brother, Guy Hewett, spoke of a legacy built on pride and tireless effort. “He saw it as a duty to inform the country,” Hewett shared, “and took great joy in seeing what the trust has become.”

Butler’s impact extended far beyond the initial creation of the organization. He remained deeply involved for decades, witnessing its growth into a national force for change and advocacy.

Co-founder of Terrence Higgins Trust dies Martyn Butler co-founded the Terrence Higgins Trust in 1982 after the death of his friend Terry - the first person to die of Aids in the UK. FACEBOOK

Health Secretary Wes Streeting hailed Butler as a “tenacious campaigner” whose foresight and empathy humanized the Aids epidemic. Naming the trust after his friend was a powerful act, transforming a personal loss into a symbol of collective resilience.

Richard Angell, the current chief executive, revealed the organization’s very existence is owed to Butler’s unwavering commitment. “Terrence Higgins Trust literally wouldn’t be here if it weren’t for Martyn,” he stated, emphasizing the depth of his involvement.

From the first fundraising events to countless public appearances and media interviews, Butler was a constant presence, tirelessly championing the cause. He even offered his home phone number as the first Aids helpline in 1983, a testament to his extraordinary compassion.

Beyond his advocacy, Butler was an inspiration to the deaf community, demonstrating courage and determination in all aspects of his life. He leaves behind his mother, Diane, and brothers Guy, Andrew, and sister Jacqueline, his memory forever etched in their hearts.

His legacy is not merely one of organizational achievement, but of profound human connection, unwavering dedication, and a refusal to accept silence in the face of suffering. It is a legacy that will continue to save lives and offer hope for generations to come.

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